OHDSI Finland 

Background 

FinOMOP and the OMOP common data model (CDM) conversion projects started in 2019, funded by an EU IMI2 EHDEN data partnership and local funds. The first data partners to convert their data to OMOP were some of the Finnish university hospitals and FinnGen. In 2022, the Finnish Institute for Health and Welfare (THL) joined and helps to coordinate the effort.   ​

Primary health care is covered by legislation-mandated population registries governed by the Finnish Institute for Health and Welfare (THL). THL holds several national registries. The mapping of these governmental registries has been initiated in 2022 (HILMO, avoHILMO, FinRegistry).

Secondary/tertiary health care is covered by five university hospitals. 3 out of 5 have completed OMOP-conversion, covering more than 70% of the Finnish population. Our aim is complete coverage by 2025.​

FinnGen is a national public-private partnership genome project, and covers germline genomic data from 500,000 biobank participants​. FinnGen has adopted the OMOP CDM.

Vocabulary mappings are coordinated through a shared Github repository, which version-controls an USAGI file for each national vocabulary and is periodically transformed into concept and concept-relationship OMOP vocabulary tables and added to the FinOMOP databases​. ETL coding has been outsourced to EHDEN-certified SMEs.​

Our vision is a comprehensive population-based health data infrastructure for Finland by 2025​.

Objectives 

OHDSI Finland (aka FinOMOP) aims at a high-quality, granular mapping of key medical data sources (electronic medical records (EMRs), governmental registries, genome sequencing projects) with comprehensive coverage (nationwide, primary, secondary, and specialist care) to the OMOP CDM, for a comprehensive, population-based health data network and ecosystem in Finland and reliable, transparent and real-time evidence generation by harmonized data applications.

Sub-objectives include:

  • Hold regular FinOMOP meetings and task specific meetings for the analytics, vocabulary and extract-transform-load (ETL) workgroups
  • Maintain a common mapping codebase through a shared Github repository and version controlled USAGI files for each national vocabulary
  • Engage and contribute to the OHDSI, EHDEN, Nordic OMOP collaboration communities. 

Leading Organisation(s)

Eric Fey (This email address is being protected from spambots. You need JavaScript enabled to view it.)
HUS Helsinki University Hospital
Artificial Intelligence Applications and Analytics Services, HUS IT (HUS Tietohallinto)

Members

1 CA Coordinator/admin, TA Analytics, TV Vocabulary, ETL Extract-Transform-Load

Name

Organization

Roles1

 

 

CA

TA

TV

 ETL

THL

         

Persephone Doupi 

THL

X

     

Gustav Klingstedt 

THL/Tiedonkeruu

X

 

X

X

Jan Magnusson 

THL

       

Mikko Härkönen 

THL/Koodistopalvelu

       

Esa Ruokokoski 

THL

     

X

Petteri Hovi 

THL

       

Jukka Jokinen 

THL

       

Mika Pihlajamäki 

THL

 

X

   

Anna Hammais

THL

X

 

X

X

HUS

         

Kimmo Porkka  

HUS CCC hematology

       

Perttu Koskenvesa 

HUS CCC hematology

X

X

X

 

Eric Fey 

HUS IT

X

X

 

X

Annu Kaila

HUS IT

     

X

Imre Västrik 

FIMM

       

Minttu Marttila 

HUS IT/UH

       

Juho Eineluoto

HUS urology

       

Marianna Niemi

HUS IT

X

X

X

X

Juho Happonen

HUS IT

X

     

Johanna Niklander

HUS IT

 

X

X

X

Valtteri Nieminen

HUS IT / iCAN project

       

Samu Eränen

HUS IT/ Oncovalue

       

Matias Tolppanen

HUS IT

   

X

X

Mikko Vaarala

HUS IT

 

X

 

X

Johanna Sanoja

HUS LUNG RESEARCH / iCAN

       

TYKS/VSSHP/Auria

         

Pia Tajanen 

VARHA

X

     

Arho Virkki 

VARHA

       

Per-Erik Gustafsson

VARHA

       

Tommi Kauko

VARHA

       

Ettala Otto

VARHA

       

Mikael Hoegerman 

VARHA

       

TAYS/Pirha

         

Kati Kristiansson

PIRHA

       

Sampo Kukkurainen 

PIRHA

X

 

X

X

Leena Hakkarainen

PIRHA

       

Mark van Gils

PIRHA

       

Alpo Värri

PIRHA

       

Nita Mettinen

PIRHA

       

KYS/PSSHP

         

Simo Ryhänen 

PSSHP

X

     

Arto Vesterbacka

PSSHP

     

X

Arto Mannermaa 

PSSHP

       

Kai-Markus Taipale

Biobank of Eastern Finland

       

OYS/PPSHP

         

Jussi Koivunen

       

X

Hanna Öhman

Pohde/Tutkimuspalvelut

 

x

   

Minna Mäkiniemi

Pohde/Tutkimuspalvelut

       

Karri Naukkarinen

Pohde/Tutkimuspalvelut

 

x

 

x

Tommi Kallunki

Pohde/Tutkimuspalvelut

 

x

 

x

Finnish Cancer Registry

         

Aapeli Nevala

Syöpärekisteri/EUCanScreen

       

Maiju Pankakoski 

Syöpärekisteri/EUCanScreen

       

Sebastian Johansson 

Syöpärekisteri

       

Research groups

         

Javier Gracia-Tabuenca 

TUNI/FinnGen

X

X

X

X

Sam Padmanabhuni 

UH/FinnGen

 

X

X

X

Joanne Demmler 

UH/FIMM/FinRegistry,FinnGen

X

   

X

Anna-Maija Tolppanen 

HORIZON-RIA (UEF)

X

     

Valtteri Nieminen

ICAN

       

SME representatives

         

Ida Berzelius

BCB Medical

X

     

Tuomas Tikka

BCB Medical

     

X

Suvi Pakarinen

BCB Medical

   

X

 

Ville Lehtinen

BCB Medical

 

X

   

Tomi Laitinen

BC Platforms

       

Pasi Rikala 

ProductivityLeap

 

X

X

X

Heidi Hakala 

ProductivityLeap

X

     

Anna Virtanen

ProductivityLeap

 

X

X

X

Janne Kauhanen

ProductivityLeap

     

X

Elina Sarpola

ProductivityLeap

 

X

   

Pentti Nakari

ProductivityLeap

 

X

 

X

Data Partners

Name

Organisation

Data Type

Status

Link

Hospital District of Helsinki and Uusimaa

HUS

Hospital

ETLed

www.hus.fi/en,  Data overview (FI)
HUS OMOP data catalog

The Wellbeing Services County of Pirkanmaa

PIRHA

Hospital

ETLed

www.pirha.fi/en/

The wellbeing services county of Southwest Finland

VARHA

Hospital

ETLed

www.varha.fi/en

FinnGen

FinnGen

Registry

ETLed

www.finngen.fi/en

Finnish Institute for Health and Welfare

THL

Registries

ETL ongoing

https://thl.fi/en  

Wellbeing services county of North Savo

PSSHP

Hospital

Onboarding

https://pshyvinvointialue.fi/web/en

Oulu University Hospital

PPSHP

Hospital

Onboarding

https://oys.fi/en/

How to contribute?

If you are interested to join or learn more about the Finnish national node you may contact us directly at:

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